Over 17,000 People in the UK Live With Sickle Cell Disease. In Scotland, Most Face It Alone.
Sickle cell is a life-threatening blood disorder that causes excruciating pain, frequent hospitalizations, and isolation, which predominantly affects African and Caribbean families. In Scotland, nearly 500 people struggle with the disease.
Children like Amara can spend up to 47 days in the hospital each year treating sickle cell complications. Until 2016, there was no dedicated support organization in Scotland to help families and communities manage the crisis until the Hope Project.
Hope Project Scotland was founded in 2016 by Christine and Lekan, who live with sickle cell themselves, because they couldn't find the help they desperately needed.
Today, we provide 24/7 crisis support, weekly peer groups, and youth empowerment workshops to families across Glasgow and beyond.
Worldwide children helped and treated from sickle cell disease
Supported by
Sickle cell Care in Scotland, UK
About us
Where it all begun..
In 2016, Hope Project Scotland was founded by Christine and Lekan, both living with sickle cell disease, alongside other families facing the same crisis. Beyond the physical pain caused by the disease, families and patients suffered social stigma and isolation, which worsened their quality of life as they battled the medical and financial demands of staying healthy.
In Scotland, there was no dedicated local support for families affected by sickle cell and other blood disorders. Our mission was clear from day one: bring together patients and their families to eradicate the isolation, social stigma, and prejudice, and advocate for better healthcare for people living with the disease.
Hope Project Scotland was launched on September 5, 2016. A year later, it became a registered charity (SC047913). Today, through community support, education, and advocacy, we provide 24/7 crisis support, weekly peer groups, youth empowerment workshops, and family activities across Glasgow and beyond.
We're led by people who live this reality every day, and that makes all the difference.
‘Sicklers’ and their carers can live happy and fruitful lives
Awareness of the disease in families is paramount
Shining a light on Thalesamia and other critical blood diseases
MISSION
THE JOURNEY SO FAR…
Our Mission is to build a community where we support patients and their families affected by the disease, easing the stress and trauma that’s often caused by the unknown.
Donations recieved - £10,000/£100,000
10%
Members turned volunteers
72%
IMPACT
Our impact on the community
240+
Children helped
500+
Members helped
5K+
People Reached
2016
Founded in
BLOG
Stay updated with new stories
12-04-2024
Hope Project Scotland steps up partnership with SPAH
Read more
12-04-2024
Scotland Rugby star Aaron Purewal becomes first Hope Project Scotland Ambassador